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Restless by nature, on a whim I blew off city living and my career, to try my hand at a simpler-slower life in rural Tasmania. It's going to be one heck of a learning curve..join me as I find my feet, fingers crossed!

CFS info..

Daily living with Chronic Fatigue Syndrome.
Here are my lifestyle guidelines.
Every case is different, ultimately do what feels right for you.

-Early diagnosis is essential
-Find a health professional who accepts your situation & can work with you
(don't be afraid to shop around for your GP) & have regular health checks.
-Name it, own it; so the healing can begin.
-Hit the library, read..read..read, information is power.
-Stop, re evaluate your life/job/situations, make changes if necessary & can.
-Prioritise everything you do, energy is gold- Put it in your 'body bank' for another day.
-Natural therapies (althou expensive) can really help you to cope on a daily basis.
i.e: Acupuncture, Herbalism, Lymphatic drainage & Naturopathy.

I find daily Vitamin supplements invaluable to support my compromised immune system.
(In Tasmania, Vitamin D is a must)
-Join a support group & if your feeling suicidal get help asap, don't tough it out.
-See a psychologist, don't bottle it, long term it's better not to unload on your loved ones
& to acknowledge what you personally need to work on. Awareness & mindfulness will often help to unlock the physiological components of this condition- Journaling can be helpful.

-Eat as healthy as practical 'diet'- Home cooked, organic, unprocessed, hi protein 35%  & low GI 55%, healthy fats 10% & lots of rainwater. 
I switched from a vegetarian 'diet' to daily red/white meat meals, instantly I noticed the difference and still continue to.
Eat small meals often to bring in energy- Don't skip breakfast!
-No stimulants, alcohol, caffeine, drugs & too much refined sugar.
-Watch for food intolerance's, they can chop & change over time.
-In bed by 9.30pm..rise by 9am-earlier times are even more beneficial.
-Limit activities to hi energy times, visit people outside of your home..it's easier to leave when your energy drops without them taking offence.
Reduce social activities & nights out.
-Avoid stress-ors, stressful situations & people that drain.
-Start non aerobic exercise like: taichi, swimming, walking & gentle gardening.
-Watch for brain fog, beware when driving, reduce if possible.
-Create a peaceful haven at home for revitalisation.
-Adopt a positive mindset, it may seem hard but one positive thought can create another. 
-If your head is spinning off, distract yourself & do something nurturing, to shift your focus.
-Look for signs if feeling overdone & STOP-REST..until you feel energised.
-Keep away from sick people, your immune system needs all the help it can get.
-Watch for over heating in summer, excess body heat may be distressing.
Don't over plan, if your not coping, cancel last minute rather than risk over doing it. 

**Finally Medical Qigong has made a big difference to my physical & mental health. It's manageable on even the flattest day & able to get me moving plus manage  fluctuating anxiety levels, that were a large factor with my CFS.

ROUTINE IS VITAL.
Everyday is different, look for the positive in the day, even if very small.
MY MOTTO: If you don't feel good....then try to look good, it helps.

'The patients guide to CFS & Fibromyalgia' by Bruce Campbell
In Australia it's available at:
This book changed, how I looked at CFS.
Logging my energy levels, showed me where I was overdoing it & to 
take responsibility for my choices.

Fatigued to Fabulous by Dr. Jacob Teitelbaum, was also an interesting, informative read.

Checkout the fabulous online resource from Adelaide's ME/CFS Society (Australia)
It's packed full of latest info/research & is updated almost daily.
http://sacfs.asn.au/
They have guidelines for GP's & Psychiatrists, which I would recommend reading. http://sacfs.asn.au/download/guidelines.pdf

I have progressed a long way from when I first devised this list.
While I'm still not back to, what is considered 'normal,' I can go about my day & I feel like I'm improving all the time.

I hope you find this helpful.
Good luck on your Inner & Outer journey- There's no escaping it with CFS..

2 comments:

  1. This is lovely to read- and thank you for following my blog! My brother has had debilitating CFS for the last two years and has actually gotten worse. Nice to hear you have progressed from when you first devised this.
    Leah

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    Replies
    1. Thanks Leah, it's certainly a debilitating condition with no timeline of wellness, which is possibly the hardest part of it. I def got worse around the four-five year mark & then started to get better in my sixth year. It's a challenging mental ride which I wouldn't wish anyone to go thru!! take care

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